I realize that I write a lot about the resources available (or lack there of) for special needs children and their families. However, I have long thought that one of the greatest challenges for the parent(s) of handicapped children is lack of resources, lack of available care and education, and lack of global support. These take a much heavier mental and physical toll on the parent than the child‘s actual disability ever thought of.
A new study by the Texas A&M University Center on Disability and Development seems to give statistical data to my personal opinion. The study was published in Rehabilitation Psychology.
Seven Texas based focus groups were conducted with 40 parents of children with disabilities. The collected data was coded into themes. The four significant themes that serve as barriers to a positive parent wellbeing were:
1. Access to information and services
2. Financial barriers
3. School and community inclusion
4. Family support
Read more about the details of the study here.
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